It’s difficult at the moment. Especially as I’ve already set myself the very specific goal of writing a personal commentary piece on how the original publications of Kanner and Asperger influenced the direction of academic and clinical thinking (and practice) in the parallel universe of autism.
I’m writing a lot. Most days in fact. Letters and emails. To the head teacher, the class teacher, the chair of governors, the inclusion service, the caseworker at the LEA, etc. I’m on the phone a lot too. I hate the phone. Parent Partnership, IPSEA, Contact a Family, the LIO, head teachers in-county, head teachers out-of-county, etc. I’m visiting schools – mainstream, enhanced resource and special – and attending meetings and conferences and legal clinics.
The Autism Show was a bit quieter than last year but I still couldn’t take two consecutive lectures in the Autism Matters Theatre without a break in between. Some weird acoustics in there, man. And somewhat troubling points of view, too. Maybe it was because he was flustered, after arriving late to deliver his lecture because of the train fiasco, or maybe it was just because he was being an insensitive prick; I couldn’t quite tell which. But for a Studio 3 representative, talking about low-arousal strategies for dealing with challenging behaviour, to claim that PDA is just a new nonsense label was, well, astounding. And not in a good way. I just can’t get my head around that one.
“We’ll waive the 7 hours it took someone to do all the photocopying and just charge you for the paper and ink, as a gesture of good will.” Really? Legally, you’re not actually entitled to charge me for any personnel hours. But I’m not going to rise to the bait. Or speak to you again without either your consent to record the conversation on a dictaphone or in the presence of an independent note-taker-witness. You know, if you’re going to be like that. If you were doing the right thing by my boy in the first place, I wouldn’t have to resort to citing the Data Protection Act in writing or using the words “disability discrimination,” Mrs Primary School Head Teacher. Your first concern is your Ofsted rating. Mine is the mental wellbeing of my 5 year old child. I’m done playing nicely with you.
I could rant and rant and rant…
But the laundry needs sorting, the custard needs restocking, the dog needs walking, the reports for the assessment team need compiling, I still need to Google directions for this afternoon’s meeting and I’ve been up over 4 hours and still haven’t had any bloody breakfast!
Just what does this stay-at-home Mum do all day long? I’d love to be able to say, “I blog!” 🙂